An Act designating April 5 as Okur-Chung Neurodevelopmental Syndrome Awareness Day
Generates a plain-language summary of the bill text and history.
| Date | Branch | Action |
|---|---|---|
| 7/6/2026 | Senate | Read; and referred to the committee on Senate Rules |
| 7/2/2026 | House | Read third and passed to be engrossed |
| 11/24/2025 | House | Read second and ordered to a third reading |
| 11/24/2025 | House | Rules suspended |
| 11/24/2025 | House | Committee reported that the matter be placed in the Orders of the Day for the next sitting |
| 10/30/2025 | House | Bill reported favorably by committee and referred to the committee on House Steering, Policy and Scheduling |
| 9/8/2025 | House | Reporting date extended to Wednesday, December 3, 2025 |
| 5/30/2025 | Joint | Hearing scheduled for 06/04/2025 from 11:00 AM-05:00 PM in Gardner Auditorium |
| 2/27/2025 | Senate | Senate concurred |
| 2/27/2025 | House | Referred to the committee on State Administration and Regulatory Oversight |
| Committee | Recommendation | Vote |
|---|---|---|
| J25 | Favorable | 1 entries |
| H52 | Place in OD | — |
| H36 | Correctly Drawn | — |
Chapter 6 of the General Laws, as appearing in the 2022 Official Edition, is hereby amended by inserting after section 15ZZZZZZ, the following section:-
AAAAAA. The governor shall annually issue a proclamation setting apart April 5 as Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day, to raise awareness of this rare genetic disorder caused by heterozygous mutations in the CSNK2A1 gene on chromosome 20 and manifesting as developmental delay or differences in brain function, which can be managed with early therapy, and recommending that the day be observed in an appropriate manner by the people.
Chapter 6 of the General Laws, as appearing in the 2022 Official Edition, is hereby amended by inserting after section 15ZZZZZZ, the following section:- Section 15AAAAAAA. The governor shall annually issue a proclamation setting apart April 5 as Okur-Chung Neurodevelopmental Syndrome (OCNDS) Awareness Day, to raise awareness of this rare genetic disorder caused by heterozygous mutations in the CSNK2A1 gene on chromosome 20 and manifesting as developmental delay or differences in brain function, which can be managed with early therapy, and recommending that the day be observed in an appropriate manner by the people.